Atlanta, USA. Massad, S, et al : Health-related quality of life of Palestinian preschoolers in the Gaza Strip: A cross-sectional study. BMC Public Health, 11 1.
Elnuweiry, H. Al Quds University, Jerusalem — Palestine. Vlachioti, E, et al : Assessment of quality of life in adolescent patients with cancer and adolescent survivors of childhood cancer, Journal for Specialists in Pediatric Nursing, 21 4 , pp. Journal of Cancer Therapy, 04 07 , pp. Al-Gamal, E, Long, T.
Journal of Clinical Nursing, 25 , pp. Batalha, L, et al : Quality of life among children with cancer: agreement between child and parent reports. Esc Anna Nery, 9 2 : pp. Eilertsen, M, et al : Psychosocial health in children and adolescents surviving cancer, Scandinavian Journal of Caring Sciences, 25 4 , pp. A page resource that provides practical advice for children diagnosed with cancer between 6 and 12 years of age.
Warm and funny illustrations and easy-to-read text help the child and parents make sense of cancer and its treatment.
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For Spanish-speaking children diagnosed with cancer between one and five years of age. This page picture book is written for the preschool 1 to 5 years child who has been diagnosed with cancer. Illustrated by Mike Dodd and written through the eyes of his six-year-old son Oliver, this resource focuses on the many questions that siblings have when their brother or sister is diagnosed with cancer and offers constructive ways on how they can provide support. This page coloring book is filled with inspirational pictures and activities for kids and teens diagnosed with cancer.
With topics such as healthy food choices and homemade cleaning supplies, this resource provides advice for safe, affordable household practices for families. Provided free to families by the Helping to Heal Foundation. Also, negatively worded items on the NEST were changed into positively worded items. In the pilot study, four parents completed the final questionnaire and evaluated it on clarity, length, comprehension and presence of any difficult and bothersome questions.
No further changes were made. For descriptive analyses of demographic and clinical characteristics, means, standard deviations SD , frequencies N , and percentages were used. The scores of the instruments PedsQL 3.epahocezor.ml
Childhood Cancer Survivorship: Improving Care and Quality of Life | The National Academies Press
Between and , a total of 85 parents were enrolled in the study with a response rate of Mostly, the interviews were conducted in the outpatient clinic Table 1 is a summary of demographic characteristics of parents. Most of the participants were mothers Table 2 presents the biographical and clinical data of children with cancer. More than half of the sample The total cancer scale score was Five of the eight subscale scores were greater than Based on parental input, children on average experienced 7.
The most prevalent symptoms were feeling irritable The symptoms that were mostly addressed by the healthcare team were nausea Table 4 represents MSAS symptom prevalence and management in details. Figure 1 is a visual representation of the most prevalent MSAS symptom mean scores. Most of these symptoms despite being highly prevalent and psychological in nature did not receive any form of treatments. The relatives who took care of the children in the past month reported statistically lower worry scores compared to the mothers and fathers Fathers with university education viewed their children to have less cognitive problems compared to fathers with secondary or technical education Children with solid tumors had statistically significant lower scores on the nausea and cognitive problems subscales than those with blood cancer.
In addition, children skipping school for more than 45 days had more problems with nausea than those who skipped less from school A comparison based on elapsed time since diagnosis, showed that children living with cancer for more than 9 months had significantly lower total cancer score The financial burden scale score was 5. The medical care scale had a score of 8. To our best knowledge, this is the first study in Lebanon assessing parental perceptions regarding the QoL and symptom prevalence, in addition to the quality of care provided to a heterogeneous sample of children diagnosed with different types of cancer.
The results in our study showed that children with cancer had treatment anxiety, more nausea, and greater worry as perceived by their parents.
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When compared to Varni et al. Our findings were to great extent similar to a Chinese study, where parents reported their children who were receiving cancer treatments to have more problems in nausea, worry, treatment anxiety, and procedural anxiety The total cancer score in our study was A similar total score of When the PedsQL total score was compared based on gender, females had significantly a lower mean score that was in line with a study from the United States 8.
As for the subscales scores, girls experienced significantly more pain and hurt and had perceived physical appearance problems when compared to the boys in our sample. When the total and subscale scores were compared based on time since diagnosis, children diagnosed with cancer for more than 9 months had significantly lower mean scores in the total and four of the subscales; worry, cognitive problems, perceived physical appearance and communication.
The significance of being worried was also common in a Canadian study by Tomlinson and colleagues reported by parents, where older children and those living longer with cancer had the lowest scores more worry Based on the MSAS, parents on average reported 7. Children after four months of being diagnosed with cancer had around 8.
Children and young people with cancer
Despite using different symptom assessment tools, bereaved parents from Lebanon 15 and Australia 22 identified fatigue, anorexia, and pain to be the most frequent symptoms experienced by children at the end of their lives. When our findings were compared to an unpublished data on symptom prevalence reported by Lebanese children with cancer, the results were similar to a greater extent. The younger generation aged years mostly had appetite loss, pain and nausea, while older children aged years complained from fatigue, being irritable, pain, worrying, and lack of appetite Miller and colleagues reported nausea, fatigue, lack of appetite, pain and feeling drowsy being mostly common among hospitalized oncology patients between 10 to 17 years of age